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I agree with everything that everyone has said here. You need to take a breath and move forward. There are FAR too many doctors and it is FAR too important to Steve to be putting up with mediocre ones!
After your breath, actively seek answers. You are definitely not getting them. There are so many experts and wonderful doctors dealing with these diseases on a daily basis. Their knowledge is unbelievable on this very complicated subject.
Keep checking back here for support. That is a huge lifeline for you!
Good luck and God bless!
Deb
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