Thread: Losing it
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Old Tue Nov 22, 2011, 10:02 PM
misscakes misscakes is offline
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Join Date: Nov 2011
Location: Savannah, Georgia
Posts: 17
Unhappy

I am in Savannah, Ga. My doctor referred me to an "AA specialist" in Atlanta @ The Winship Cancer Institute at Emory. Neither of them have mentioned any sort of treatment plans other than a BMT at some point. Since my platelets are now at 17, my hematologist wants to give me a transfusion on Monday but I really don't want to just keep getting transfusions every week until they figure out what they're doing as I know it will increase the odds of my body rejected the transplant. My doctor told me today that they have found several preliminary matches through the National Bone Marrow Registry but they just arent ready to do anything. My doc here suspected AA whenever he first started seeing me and did the first BMB back in May. I was pregnant at the time and no one ever talked to me about saving the cord so I could use that instead of looking for a match. The more time passes the more I feel like I'm just going to die waiting for them to make up their mind. Now my doc wants me to see him 2-3 times a week to be monitored and transfused as necessary. What am I supposed to tell me job? Oh hey,they cant make up their minds so how about you pay me to keep leaving work. I have had a low grade fever for a few days now. I feel too tired to get out of bed and my bones hurt to tears constantly. I know I'm rambling now I'm just so frustrated!!
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Kimberly; AA patient; diagnosed 10/11; ATG 01/12 with cyclosporine
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