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Old Wed Jun 29, 2016, 11:48 AM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Vickij. We are all glad to hear that you are mostly doing well. I had a STC for PNH in Dec 2011. I have had some GVHD and a few other issues along the way, but I would do it all over again. I too had a MUD donor who I have never met or communicated with. By that I mean that he never replied to my letter that I sent. I was told only that he was 27, had type O blood, (diff than mine), and lived in the U.S. Like you, I have some fatigue every now and then but it seems like it is less than it was in the last few years. I hope that you continue to improve and are able to work through any issues.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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