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Treatment Options
If you can get into a clinical trial at the National Institutes of Health there is no charge for the treatment (although you would have to travel to Bethesda, MD). Go to clinicaltrials.gov and search for "myelodysplastic syndrome AND nih."
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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