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Old Thu Aug 22, 2013, 03:34 AM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
SAA Mom, today there was a live Webinar presention on the topic of PNH on the AAMDS website. It was very informative to say the least.

After the presentation someone asked the Dr. about patients that present with AA and PNH. The doctor said something to the effect that might be an indicator of a good response to IST. He also mentioned that for some people the PNH clone actually disappears, but they're not to sure as to why yet.

Please do go check the Webinar. You might find answers to your questions.

Take Care
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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