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Old Sun Nov 3, 2013, 10:27 AM
StephM StephM is offline
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Join Date: Oct 2013
Location: France
Posts: 19
You're doing really great Karenish! I also read that the slower it takes for the counts to raise the better.
Have you been on cyclosporin for 3 years? What is your current dosage? Did you have any side effects?
My brother is still at a very low dosage because of side effects. At first, it was blood in his urine and now it's joint pain- especially in the knees and sometimes the elbows- that make it difficult for him to walk or to carry anything. He has 125 mg twice a day.
He is young and he was very sporty. He worked as a gardener. Now he can barely climb the stairs
We have an appointment with the hematologist soon and I'll ask him if there's another drug he can take. I saw on this site that some of you were taking tacrolimus.
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Steph, 25yo brother diagnosed with AA July 2013. Horse ATG Sept, currently on cyclosporin
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