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New to site
I am very happy that I found this site. It seems that I have been searching for people who are in the same boat that I am in. I was dx in 2006 with mds. My counts have been going down very slowly. I had my 2nd bone marrow over the summer and the results where the same. I guess I was hoping that they made a mistake the first time. I had my blood checked in October and my white count was up from the summer. I decided to take the fall off and forget about mds. I have an apt. on Presidents day so back to reality. I have been reading reports on prognosis rates and I am confused. For the low level they are stating 3 years prognosis. Is that right? Do people live longer? I read some stories on line about people having it for 10-15 years. My Dr. said that everyone is different and with the new drugs things are changing. I would love more info.
jnwink
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