[Relentless Against SAA]

Triumphe,

Thank you for your reply.

Do you think the cost will go down once Soliris goes generic?

I have been told the cost of the med for the facility administering is $400,000 per year. If the facility marks that up 50% (which I've been told is the usual hospital mark up) that is almost unbelievable. Please understand that as a family member of someone with a rare disease, I am very very thankful this med is available. I also understand that pharmaceutical co need to make a profit because they answer to stock holders. This can be heartbreaking for rare disease cases because most of the research money is put in areas where the company will see a better return on it investment. I guess my concern is how American's or their insurance can afford to pay for Soliris year after year.