From the Company website:
"Alexion’s objective is that every patient with PNH or aHUS who can benefit from Soliris® (eculizumab) will have access to Soliris. We work with private and public payers, policy makers, and governments around the world so that patients with severe and life-threatening ultra-rare diseases can have access to highly effective, life-transforming therapies. Because of the efficacy of Soliris, governments around the world are recognizing the value of Soliris and are partnering with us to ensure that their citizens suffering with devastating, ultra-rare disorders have access to treatment."
http://www.alexionpharm.com/patients/support.aspx
I think Leigh Clark at
www.AAMDS.org might know how to help you get assistance.
BTW: I believe this is the most expensive drug on the market. I heard of one on the news last week relating to liver failure that may cost more, but who's counting at these prices.
