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Neil/Tytd,
I read every word of Flamingo Jim's blog. A lot of great info there. Thanks.
As for me my bone marrow biopsy from Nov 19, 2010 showed macrocytic anemia with dysplastic changes in all three lineages including presense of ringed sideroblasts with 1% blasts.
Tried erythopoietin supplement 1.5 years ago but my levels were already high so it had no effect.
Began RBC transfusions in Jul 2010
Prior to beginning Vidaza,
WBC 2.6, HGB 7.6, HCT 22.8, PLT 211,000
Was receiving 2 units RBCs every 2 weeks.
My last round of Vidaza was 2 weeks ago...after that I went 5 weeks before a transfusion, so it is working.
Doctor figures that with the increasing fatigue and being 44 years old, it is time to go ahead with the transplant. I have remained at work (active duty Air Force) but in a limited capacity.
Thanks for the replies,
Steve
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Steve, 44 year old, MDS RARS, Dx Nov 08, 3 rounds of Vidaza, RBC trans dependent, BMT sched for 12 Sep 11
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