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Old Sat Feb 18, 2012, 12:14 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Sara,

I am sorry to read that your husband has to deal with this again. However, I'd be extremely cautious with his doctor. Many people with AA would dream of having your husband's counts month/years after ATG treatment. It is not standard protocol to consider ATG with counts as you listed.

AA is diagnosed by exclusion. So, it is important to do a full workup on your husband to see what else could be causing his bone marrow suppression. This should include tests for vitamin and mineral deficiencies (folate, B12, iron, etc), as well as viruses (CMV, EBV, HIV, parvovirus, hepatitis, etc.) , lupus, and heavy metal toxicities, among other things. If these tests have not been done on your husband, than his doctor probably isn't an expert in AA, and you should seek out someone who is while your husband is stable.

I wish you both the best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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