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Hi Glenda,
If I remember correctly James M used to travel to Rocky. He has an excellent reputation. Pity he is a little hyperactive.....(understatement).
Good luck with the Exjade. I was started on 1000 a day but ended up dehydrated and with pancreatitis so I had to stop. Luckily I stopped needing transfusions so I had venesections to bring the ferritin down. I haven't had a ferritin level since around August/Sept last year but it was under a thousand then.
Are you a member of the Leukaemia Foundations telephone forums. I used to talk on there regularly but I stopped feeling as if I belonged due to my diagnosis change. I found it very helpful.
Regards
Chirley
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