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Just an update
Its been a while since I've done a post here. Since last time I posted I've had a couple blood transfusions with no ill effects. I've been seen by the haematologist and he increased the Exjade to 500mg a day. Results of blood test 20/06/13 HB was 100 WCC 3.8 (This after last transfusion)
I think next visit to haematologist 9/7/13 he may discuss having another BMB.
On Thursday I have an appointment with a Natural Therapist near here just to get her view on the situation.
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