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Old Mon Jan 29, 2018, 12:57 PM
KMac KMac is offline
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Join Date: Oct 2012
Location: Golden, Colorado
Posts: 103
Answers to your AA questions, for your Mom

Hello,

I'm sorry your mother is going through this. Your questions are intelligent and well-thought out. Your mom is fortunate to have you advocating for her.

In short, I don't have answers to your questions. I strongly believe that what your mother needs most it to be treated by a team of Aplastic Anemia specialists at a Center of Excellence. I identify with your frustration that the doctors treating your mother appear to be unqualified. I'm convinced this is a common situation unfortunately, as aplastic anemia is so rare. One of America's foremost Aplastic Anemia doctors urges patients to get seen quickly by qualified hematologists, as per link below:

https://www.youtube.com/watch?v=02rvFOFYOVw

I began my treatment in a hospital where the doctors were not familiar with aplastic anemia, but switched to a hospital where there is deep expertise in treating this disorder (PSL/CBCI in Denver, CO). Six years post treatment, I have recovered quite well. I feel great, my counts are good and stable, I have my life back.

And treatments continue to improve, as per link below. There is hope for your Mom, but I feel strongly your questions need to be answered, and she need to be seen, by qualified experts.

https://www.youtube.com/watch?v=ECQRfjDWRvE

Best of luck to you both,
Kevin
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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