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Old Wed Jun 17, 2009, 08:09 AM
paulaespada paulaespada is offline
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Join Date: Mar 2008
Location: Azores, Portugal
Posts: 91
My husband experience

Quote:
Originally Posted by JEZ View Post
I took 2.1 mg per kg. (100 mg twice per day). I did not pay attn. to trough but my doctor did tell me my cyclosporine level was 162 when labs were done about 7 hrs. after my AM dose. I was in remission after 2 years with normal labs but recently had to go off of cycylsporine as my creatinine was starting to climb (1.6) I am presently trying generic Imuran to see if I can substitute it with equally effective results but less kidney toxicity. Too early to say if it will work.
Hello!

My husband started with 300 mg/day (1 year ago). Now he is decreasing very slowly and is with 120 mg/day.
One thing we learned is that he needs to drink about 2.5 to 3 liters of water/day, no alcohol at all.
I wish you all the best and if there is anything more I can help, please let me now.
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Paula Espada - wife of Jorge Espada, diagnosed AA in June 2008, ATG, cyclosporine until Janury 2010, relapse and 2nd ATG June 2010
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