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Old Wed Apr 21, 2010, 08:08 AM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Thank you!

Thanks ladies, for all your advice, comments, & personal stories, I appreciate them so much ). You guys are all wonderful! It is surprising how we are all nurses with these diseases. I wonder why this is happening to all of us? I work in the NICU now to prevent myself from getting anything adults have, but did med-surg, ortho-neuro, and home health for many years after graduation. I'm curious, did or do ya'll work day or night shift? I am currently night shift, but waiting for a day shift position to help my immune system heal at night like its supposed to. What are ya'll doing to stay healthy? I have made alot of dietary changes & take supplements, trying to be vegan mon-fri.
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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