Thread: VSAA - Daughter
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Old Mon Jun 24, 2013, 02:04 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Sajid,

I'm sorry to hear about your daughter's aplastic anemia.

You could try contacting the National Institute of Blood Diseases, the Aga Khan University Hospital, and the Pakistan Institute of Medical Sciences to ask for advice. I suggest that you ask who can search the international registries to see if there is a match for your daughter in the registry of any country, not just in Pakistan.

Pakistan desperately needs a national bone marrow registry and for people to join it. In 2011 there was a "Pakistan Marrow Donor Registry" website at pmdr.org but the website is no longer there, perhaps due to a loss of funding. Here is a snapshot of what the site looked like in 2011.

I've read that when there is no better choice many doctors in Pakistan give their patients a "haplo" transplant, where a half-matched parent (usually the mother) is the donor.

If you know your daughter's DR type (not just A and B) then you can check for a potential match in the U.S. bone marrow registry using MatchView.
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