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Old Tue Mar 11, 2014, 07:15 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Treatment

Hi Bambam,

Thanks for the link.
Yes, its the desperation to find a way out that leads us to exploring and experimenting. Whats the choice in a MDS situation, little or no treatment options, no estimation of disease progression, so little known about anything. Its just a crazy flurry of blood tests, injections, appointments, and transfusions. Its now almost a year since my mother's diagnosis, and every month we hope there will be some improvement or something will make a difference, but at the end of the day nothing helps to improve the red cell count.
Its good that you have settled with one form of treatment and have peace on that front at least.
Alll the best to you!!
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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