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Old Tue May 26, 2009, 11:54 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
haha thanks Vera. I sent a quick email to my nurse specialist about these packing issues and he said we could talk about it on Thursday when I'm there to have my Hickman line put in (meanwhile, I'm getting another bag of red and an HLA platelet tomorrow since I was so low this morning, with a lovely patch of petechiae across my chest).

I can't even imagine them letting you transfer to an exercise room, let alone another hospital! I've been told under no uncertain terms that I will not be allowed to leave my room (and en suite) for the duration of my time there. No naturally I'm hoping for lots of cold and drizzly weather!

And that's great you'll get to spend so much time with your friend. My mom is flying over from the States on Friday and will be staying with us and helping me recover until she has to be back at school in early September. I don't think I've spent that much time with her since I graduated high school!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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