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Old Wed Jul 17, 2013, 11:10 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi curlygirl,

I'm glad I could help. I think that it is a good sign if your son is energetic. I know for myself that I felt better after the ATG, even though it took a while for it to show in my counts.

Some follow-up questions for you...
Is your son on Sandimmune or Gengraf/Neoral?

Is he taking a total of 4 ml of cyclosporine a day?

Did the hospital do a skin test before administering the ATG? (It is water-under-the-bridge now, but I am curious.)

Also, did you ever check out the webcasts/webinars on PNH and AA on the AA&MDSIF website? They are very good.
https://live.blueskybroadcast.com/bs...?Client=680927
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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