Thread: Onconova Trial
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  #19  
Old Sun Jan 23, 2011, 08:01 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Hey Paula,

Sorry to hear about your Mom's fatigue. In my experience -- and there's research that shows most other folks with MDS have the same experience -- fatigue is the main symptom of this disease. With me it comes and goes, and it's not always related to my blood counts, and, as I understand the research, that's pretty typical.

I'll often have a "bad" day and then, the next, feel great. It can kind of make you nuts.

I hope your Mom's current fatigue is very temporary -- and that you get good blood counts tomorrow!

Take care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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