That is just wonderful. I am 38 years old and the doctor keeps telling me that my counts are low and that she wants me to get a transplant. It has only been 4.5 months and she said she has conferred with the specialist at Sloan who has arranged the transplant. This makes me uncomfortable. I do not want a transplant. I know I am blessed to have a 10/10 unrelated donor but I do not want to lose my hair, risk infertility or graft host. From my own readings I discovered it's best to get the bone marrow early within the first year if the ATG treatment fails if you are in your late 30's because it is harder in your 40's to have a safer transplant due to increased risk of graft host rejection. I also read that this goes into remission but often comes back which is another reason to get the transplant. My doctor said that some people live with this forever. That made me feel good. It is good to have better hopes for better cells I think. Doctors like that and people like you help inspire us and this is important I think.
Quote:
Originally Posted by Karenish
Well done you, i am another slow responder I had completely zilch for 10 months!! However, I never gave up hope because I actually felt better...then all of a sudden counts climbed 2 years next month is post Rabbit - all counts are normal except platelets which hover between 58 to 78....but I haven't given up on these either - Doc wants to start a years taper in March.....then I will feel very nervous! xxx good luck all xxx
|