Quote:
Originally Posted by LoveRapheal1
That is just wonderful. I am 38 years old and the doctor keeps telling me that my counts are low and that she wants me to get a transplant. It has only been 4.5 months and she said she has conferred with the specialist at Sloan who has arranged the transplant. This makes me uncomfortable. I do not want a transplant. I know I am blessed to have a 10/10 unrelated donor but I do not want to lose my hair, risk infertility or graft host. From my own readings I discovered it's best to get the bone marrow early within the first year if the ATG treatment fails if you are in your late 30's because it is harder in your 40's to have a safer transplant due to increased risk of graft host rejection. I also read that this goes into remission but often comes back which is another reason to get the transplant. My doctor said that some people live with this forever. That made me feel good. It is good to have better hopes for better cells I think. Doctors like that and people like you help inspire us and this is important I think.
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What I would do if I was you, would be to wait until 6 months and then ask for another bone marrow biopsy, this will give your consultant and idea if there is any improvement in your marrow. If there is, like me, I had a tiny bit of improvement - my doc said, It wont do us any harm just to wait and see, that was like big hope, i then reduced the stress in my life, started to eat organic stuff and drink loads of water, and as the months went buy my transfusions got less and less - as I say month 10 it all started to go up! they fluctuate now (the counts) but everyone's does, just we notice coz we are having bloods done every week.