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Old Sat Jun 29, 2013, 08:53 PM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
AA-PNH Clone and ATG

Hello All! My son was dx'ed in 2004 w/ SAA. He was stable until 2012 when he was dx'ed with a 20% PNH Clone.
His Hgb and WBC are decent, but his HGB is in the low 8's. He has only had one round of ATG and I thought that perhaps he would benefit from a second round of ATG. His new Hem/Onc Adult Medicine doctor does not think he would benefit and thus is recommending MUD BMT.
Thus far we've only found 2 potential 9/10 matches that are CMV pos. My son is CMV neg.

I'm confused as to why his doctor doesn't think a second round of ATG would be helpful for him.

Anyone have experience with a similar situation or know anything about this?

Thanks
__________________
06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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