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Eli, first off welcome and know that you are not alone.
I live not far from you in Sebring,FL. I have MDS of the RCMD Intermediate type with <5% Blasts.
Listen to what Ruth just posted, absorb every word and get the info packet from the AA&MDS International Foundation, it will answer and solve a lot of your dilemma.
I personally have no experience with Shands, but a friend of mine who has had a tough road with Type T Leukemia has gone there and swears she got better treatment and answers than she did from Moffitt.
Eli, this is the place to "hang out" for answers and support and I wish you all the best on this journey that none of us wanted to take.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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