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Old Tue Apr 17, 2012, 06:14 PM
Sally C Sally C is online now
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hello all,
Greetings from Bethesda, Md.
Just wanted to give you an update on Don's success with Promacta which he started taking 3/11. Today his platelets were 91,000 and his reds were
11.5.
Just to put in perspective - he was transfusion dependent from 1/09 until spring of 2011. He needed about 120 transfusions in 2009 and 2010. His platelets at one time got down to 4,000 so you can see the unbelievable improvement.
They also checked his eyes again for a worsening of subcapsular cataracts. The eye surgeon we saw today said she wasn't sure she would even call them cataracts as the eyes change as we age. But the main thing is there has been no worsening of whatever they want to call it.
The NIH doctors are even talking about cutting back on the Promacta if his platelets hit 100,000 out of concern for blood clots. They have this concern because clots appeared on lab rats so they are just being careful. He has an atrial fib/flutter and they actually want us to ask his cardiologist about a blood thinner. We'll see about that.
He has had absolutely no side effects from the Promacta that we can tell.
Also NIH is still recruiting for the trial for AA as well as MDS. If anyone has any questions about this please feel free to contact me. shcalvert3@aol.com.
God Bless to all,
Sally

Last edited by Sally C : Tue Apr 17, 2012 at 10:20 PM.
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