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Old Sun Mar 2, 2014, 05:01 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
I am not receiving neupogen currently and have not heard any talk of doing so, but that probably doesn't mean much. There are so many regimens that are being administered just in my little wing of 10 people. My neutrophils did drop further last night, down to 490…almost there. Woke up pretty tired even even after 9 hours of sleep.

I asked do neutrophils always get to zero or really close, and the response was, don't worry, they will be there soon enough.

My level of fatigue is also pretty high, even compared to what I came in expecting.

Hang in there!
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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