[beverly]

We just joined Marrowforums and are SO happy to see active posts, unlike the MDS foundation. My husband (David) was diagnosed with MDS as well as PNH in August 2014. At this time, he is being well managed with the PNH diagnosis with SOLIRIS. The MDS is much more difficult. He is receiving Azacitidine 5 days q wk, once a month. Recently, his HCT, HGB, WBC and RBC have been falling. He had 2 units packed red cells 3/18 and again 4/11 Our question is: has anyone tried CBD for bone marrow health and/or Fucodian? Also am interested in reading experiences with CAMPATH and with telomeres. Thank you in advance! Beverly and David