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Beverly, what does your doctor say? You are playing with fire if you go outside of the doctors advice. With the MDS you are dealing with genetic mutations which the Vidaza (azacitidine) is perhaps the most promising drug available at your husband's stage. I had eight cycles (seven days/21 days) before going to transplant. I wish both of you success.
Are the falling numbers because of the different days in the Vidaza cycle? I charted all of my CBCs and the pattern was predictable for me. My platelets always reached there nadir at 10-13 days following the last treatment each month. For me, my RBCs did not move much at all. The WBCs and neutrophils moved in tandem and I couldn't find a pattern.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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