Thread: AML relapsed
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Old Thu Jan 21, 2021, 05:09 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Platelets

Hello Cheryl,
I replied to the Covid shots before I read this mail. I am very sorry you have relapsed into AML. I'm not the 2011 friends, maybe they've all got better and just once in a while come back to say hi.
You used to advise me on nutrition etc, and I hope you are eating and sleeping alright. It helps with the treatment ahead.
Platelets live around 10 days!? I used to have transfusions every two weeks. They dropped fast. Wheat grass and Papaya leaf tea are recommended, though I drank Aojiru(it was easier to buy Aojiru here). It helps the platelets, though I still needed transfusion in the end. Hope this helps.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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