|
Stayinghopeful,
I know you are scared and all of us can certainly remember when we or our loved ones got diagnosed with MDS. But take a deep breath and hang in there. Some of the stuff you read online is very frightening and not accurate. But this Board is great and members have good advice. They have helped pull me out of the pits many times.
My advice would be to get with a good MDS doctor and don't be afraid to get a second or third opinion.
There are others on this Board far more qualified than I that can answer your questions.
Good luck and God bless you and your family. We're all in this together. It's a rollercoaster ride, for sure, but keep the faith.
Linda
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
|