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Old Wed Aug 28, 2013, 07:06 AM
marmab marmab is offline
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Join Date: Jul 2011
Location: Massachusetts
Posts: 67
I am one of those people who had an adverse response to cyclosporine. In me, in addition to the widely known, common side effects, it triggered hemolysis. My red cell count only went up after discontinuation of CsA. Interestingly, doctors at Dana Farber (whom I saw for a second opinion) said that this is more common than most people believe. Also interestingly, the doctors said that cyclosporine is not used at that institution at all.
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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