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Old Fri Apr 25, 2014, 03:55 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Caregive,

There is a great group of people that work there. They provide great hands on support if you need it as well as a very informative website and conferences. There is also a peer support network and community of hope groups that they encourage. I suggest you call them, if you haven't done so already.

Your money is well spent.

www.aamds.org
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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