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Old Sat Apr 26, 2014, 05:09 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by Caregive View Post
I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
Good. I think I will be at the one in Detroit in July. Thanks for the heads up on Charity Navigator.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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