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Old Mon Sep 30, 2019, 10:47 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
My counts were "strange" until about 1 year after transplant. I still have problems with slightly low WBC and my platelets only recently have been "normal" at 158 or so. They have been as low as 90 in the past 3 months. My whites have dropped to 1500 neutrophils and 3000 total count as well. This is 5 years after transplant.

Hopefully the chimerism study comes back with good results. In the meantime, work with him to keep illness away as much as possible.

The fact that he is off most drugs could signal that he is experiencing some hidden GVHD - it is one possibility to explore.

Good luck this week.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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