Jameson,
Were you already told that you have PNH? Have you had a flow cytometry test (the usual way to identify PNH)? A bone marrow biopsy may be necessary to pin down just what's going on and if it's PNH, PNH in combination with another disease, or something else. I hope you can get the tests necessary for a confirmed diagnosis soon, both because you don't want to risk another thrombus and because you are obviously concerned about where this will lead.
Your professional goal is admirable. I encourage you to think long-term about how to get there. Nobody your age would want to be tied to a hospital, but if you need treatment don't rule out being tied down
temporarily rather than
indefinitely. Once you have a diagnosis you can decide what to do about it. For example, if it's PNH then you could be cured with a bone marrow transplant. It's just too soon to speculate because you need more information.
Rather than make guesses or assumptions about your medical condition, work on finding out where you really stand. If the doctors aren't giving you answers, be more direct and specific. And if they still don't seem to be working with you, seek a second opinion at a major medical center. I would call the
Aplastic Anemia & MDS International Foundation and ask where you can find the best specialists for suspected PNH in Iowa or the surrounding states. You can also talk to the PNH groups listed
here. You may find out that you're not as unusual as you think.