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Old Mon Dec 10, 2018, 11:11 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Mich67,

Have you had your B12 and folate levels measured? Low levels can cause neurological symptoms.

Is your hemoglobin low? Did you fast for your ferritin tests?

Definitely get a hold of all your blood and MRI results so that you can offer cohesion between the different doctors.

Hopefully you get some answers at your next appointment!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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