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Old Tue Jul 23, 2019, 12:23 PM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hi JoMac,
I'm sorry I can't give you any information about your situation. What I can do is tell you about my husband's journey - I have posted quite extensively on the forums. In a nutshell he had over 125 blood/platelet transfusions starting in Jan., 2009. His platelets hit a low of 4,000 while receiving transfusions. He was the first MDS patient at NIH to receive Eltrombopag (Promacta) starting in the spring of 2011. Once his platelets hit 100,000 they weaned him off in 2012. He has been in remission since - last check this month his platelets were 120,000 after an episode of sepsis (due to colitis). Strangely that was the highest they have been since 2012. If interested please go back and read my posts. It has been nothing short of a Miracle.
I wish you all the best and if you have any questions please feel free to ask.
Sally
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