SALLY - I have read your posts before but will try to reread them. It's my understanding Promacta now has a boxed warning that it's not for use in MDS patients because it can speed up transition to AML.
DanL - I just received my second unit of cross matched platelets this morning. My count went from 6 to 13 after the first unit but back to 6 within 24 hrs. I have one more unit reserved for me. If these don't "stick" I think they will try HLA matched.
Meri - I was already scheduled for my transplant but suddenly and rapidly developed features of both MPN and CMML (dr. said I ws a very rare case) and ended up being admitted to the leukemia floor for 4 weeks for chemo to knock out the WBCs before proceeding with the SCT. The dr says we're still on schedule for SCT as I will go home from here for 2 weeks then back in for transplant. They don't seem concerned about the platelets even though I am currently needing platelets every day, and twice a day before they started using the cross matched platelets. In fact, I'm having a bmb today or tomorrow to see if there are any bad wbc left. If so, I'll get more chemo (either more vyxeox if only a few or something stronger if many) to finish them off, but still on scheedule for transplant. My peripheral wbc count is 0.3 so I can't imagine what they might find in the marrow.
So far, medicare & supplemental ins have taken care of everything for this part of my treatment and I was told previously by insurance coordinator that the transplant would be covered completely because I was enrolled in a Medicare tracking trial. Everyone with medicare has to enroll in it to be covered so they can track the benefit of transplant to people over 65. Before this trial they didn't cover SCT for anyone over 65.
Thank you for adding me to your rosary prayer list. It's a powerful prayer. I pray it every day here in my hospital room.
Cheryl - Thank you for your prayers & the verse. Very comforting.