Thread: Mds-mpn
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Old Tue May 6, 2014, 05:52 PM
MaryS MaryS is offline
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Join Date: Nov 2013
Location: Herndon VA my father in New Orleans,La
Posts: 24
Quote:
Originally Posted by pleasant1911 View Post
My father was diagnosed with MDS about two month ago, and I found out today that that he has MDS-MPN. Does anybody know more about this form of MDS? I google it but really did not help. Can anybody give me some information about MDS-MPN?

He is currently taking revlimid, 5mg every other day... His blood count dropped, but it dropped slower than last week. somebody please give me the 411...
Pleasant,

Jakafi is the treatment for primary myleofibrosis. It alleviates symptoms associated with the dx Ex. Enlarged spleen, itching , and night sweats. Do a google on patients who take Jakafi for myleofibrosis.
However, it can lower the blood counts like the other chemos but should level off after a few months. My dad may start this week on it but his situations has changed due to the lymphoma. We want him to get it.
Please read up on it!

Best of luck
P.S. It is very rare to have these two together.
__________________
Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
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