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Old Tue Nov 25, 2014, 02:17 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Umarerr!
You seem to already know much about what it means to have blood cancer like myeloma or MDS. You understand that you have to follow the counts and blasts in the bone marrow.

As you wrote you have to wait before you know if your husband will respond to Dacogen. Good that EPO keeps him going!

I am afraid that because your husband has already been treated for cancer he can't participate in some of the clinical trials you can find at the clin trials gov site.

Hope Dacogen will have a positive effect!
Kind regards
Birgitta-A
75 yo, dx MDS Interm-1 2006 with HGB 7.0 and severe bone marrow fibrosis. Supportive treatment with txs, iron chelators and Neupogen for low WBC until 2010. Responded 3 years at Thalidomide and 1 year at Revlimid. Now tx dependent.
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