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Old Thu May 28, 2015, 10:12 PM
Umaterr Umaterr is offline
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Join Date: Aug 2014
Posts: 15
6 months of decitabine, what now

My husband just completed 6 months of decitabine and he has had a biopsy which showed that his blasts were around 5% up from 3%. His onc thinks that this is good And wants him to stay off treatment for a couple of months to see if his counts come back. He has been off treatment for a couple months and his counts wbc is normal, however his platelets and RBC are low still. He has had 4 transfusions since November but is doing ok. His onc is discussing his next move with Dana Farber to make the best treatment decision. Has anyone gone through this? Not knowing where to go from here? What should be our next move?
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husband dx MDS 8/4/14, blasts 3%, 17Q-, low red, white, platelets. Myeloma dx in 1999, stem cell transplant 1999.
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