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Old Fri Jun 22, 2007, 01:53 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Hi Kathy,

I really cannot suggest anything since John's shingles did not spread to his eyes. That is rough. He was on Valtrex for them and they did clear up. He was also on Nupogen at the time but I don't think it helped since it did not prevent them. The only thing I can even think of is to add a really good B complex for them. They say the amino acid lysine is good for shingles also. Is the toe infection from the shingles also?

John has had surgery but he was in partial remission and not on any meds except Exjade. He needed platelets transfused before surgery and then red cells afterwards. Of course he was put on an antibiotic. He needed to have his quad tendon reattached to his knee cap. He tore it in a fall. But this does not even come close to getting an infected toe removed.

Wishing you the best,
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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