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Old Tue Dec 17, 2013, 09:33 PM
teo teo is offline
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Join Date: Oct 2012
Location: Johor, Malaysia
Posts: 117
WBC

Hi Mseth,

Sorry to hear that the EPO+gcsf doesnt work for your mom. Is the hema plan to try Danazol instead ? How is your mom Ferritin level now ?

As my mom has been on Ferriprox for 11 months, so i am not sure is it really Ferriprox bring down the WBC. I remembered asking Birgitta-A about Ferriprox in one of the post long time ago. Will try to find it.

I just thinking about Danazol as she had it last month and the WBC came down after that.

Anyway i will keep an eye on her WBC.
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015
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