Thread: Aplastic Anemia
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Old Thu Oct 22, 2015, 02:56 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
rprice,

It sounds like your daughter is getting the right care. I hope you're working with doctors who are aplastic anemia experts. They can guide your daughter's treatment as she gradually gets off the current medications. Luckily, teens usually respond well to AA treatment.

Aplastic anemia is rare, but there are other families going through the same thing with a child of a similar age. You can look for them in these forums, at patient conferences, through your treatment canter, or ask the AAMDS if they can connect you with someone in their Peer Support Network.

Social connections are very important at age 16 and a good friend may provide a type of support that doctors and family can't provide, at least not in the same way. Your daughter may be feeling isolated from friends and it's important to try to correct that. Look for opportunities for your daughter to explain what's happening to friends and former classmates and teammates, and especially to see them in person. You've learned about this disease but it's mysterious to most other people. For example, you know that you can't catch aplastic anemia by being around a patient, but unless someone explains that, her friends may not realize it. It's the first worry that friends often have.
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