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Exjade *WARNING*
Hello all~
I haven't posted for a while....hope everyone is hanging in...
I searched my previous posts regarding Exjade, but didn't get any feedback on this topic specifically.
When I read my Exjade rx paperwork warning, it says specifically not to take if it you have MDS....yet myself and others are on it. ( I am on 1500 mg daily) It always gives me pause when I recieve a new shipment, and I did ask my Dr, but cannot remember what he said.....do any of you have any info to counteract what seems against my instinct to "heed all medicinal warnings"
As always, I appreciate your thoughts..
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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