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I can't comment on MDS, but I did have a long conversation with Dr. Maciejewski about Exjade on March 16. He told me it would interfere with at least one of the meds I take. He also said it was possible to over chelate, and that would hurt hearing and visual functions.
Ferritin levels are not necessarily a good measurement as to how much iron is in the blood because some meds cause that number to rise.
On the other hand, chelation might be really necessary because of the true iron levels that have been built up compared to the effects of MDS, AA, PRCA etc.
I hope this helps with the overall discussion.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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