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Old Sun Apr 10, 2011, 06:11 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Exjade

Hi towncarlady,
Very good to hear from you again! Dacogen seems to have had a long lasting positive effect though you didn't get so many cycles or perhaps your disease has isn't progressing due to some other reason.

As far as I understand we should not continue to take chelating drugs if our ferritin level is lower than 500 - the risk for neurological adverse reactions is probably increased when the ferritin level is low.
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006, tx dependent from dx, Thalidomide and Prednisone since June 2010 when I got txs every week and platelets were 22. No txs since Sept 2010. Exjade 500 mg/day and Neupogen 2 injections/week. Latest counts: Hgb 12.7 and platelets 112.
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