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Old Sun Apr 10, 2011, 04:53 PM
cathybee1 cathybee1 is offline
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Join Date: Aug 2010
Location: Fort Jones, California
Posts: 399
To Towncarlady

Your progress on Exjade is enouraging.

Bruce and I watched a archived AA/MDS webinar from January, 2011 from Dr. Steensma and Dr. Sekeres. They reported that based on clinical trials only 50% of patients on Exjade are able to make it for a year (because of side effects), and of those who tolerate it, they can expect to see a drop of 500 points. From your results, it looks like a more attractive option. Thanks for posting.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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