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Old Mon Apr 11, 2011, 04:58 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Chelating agents

Hi cheri,
You know before Exjade was approved many patients were treated with Desferal. In Sweden that is the first drug for iron overload. We get a port-a-cath and Desferal from a home-pump in connection with transfusion during 4 days.

I started with Desferal after 40 units of PRBCs when my ferritin level was more than 1000. After 2 years I needed to combine Desferal with something else. I tried Ferriprox (not approved in the US) but my WBCs decreased. Then I started with Exjade but can only tolerate 500 mg/day due to low WBCs.
Kind regards
Birgitta-A
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